Supporting and taking care of a loved one with a serious or life limiting condition can be extremely demanding and can place a heavy burden on the emotional and physical resources of partners, family members and friends. Getting reliable information is a really important way to help you feel more in control of your situation.
Information can make it easier to anticipate some of the difficulties you and the person you are caring for might face. It can also help you get the right support at the right time.
Below is a list of some of the major conditions that fall under the heading of serious or life limiting, each with links to local and national sources of support and information.
- Heart Disease
- Huntington’s Disease
- Multiple Sclerosis
- Motor Neurone Disease
- Parkinson’s Disease
CancerBackup (now part of Macmillan Cancer Support) is a comprehensive resource of up-to-date information, practical advice and support for cancer patients, their families and Carers. There is an excellent section on caring for someone who has cancer. They also have a Freephone helpline 0808 800 1234.
Macmillan Cancer Support aims to improve the lives of people affected by cancer. They provide practical, medical, emotional and financial support and campaign for better cancer care. Their confidential helpline is on 0808 808 2020.
Cancer Journey is a signposting service for anyone affected by any kind of cancer. Their helpline 0303 333 0003 is open 7 days a week between 10am – 4pm.
Hospice Information is an information service for both the public and health professionals. They hold details of palliative care services in the UK and worldwide which can be accessed through their helpline 0870 903 3903.
Marie Curie Cancer Care nurses care for people with cancer and other life limiting illnesses. Their website has details about the services they provide and how to access them. There is a range of downloadable leaflets and booklets about caring for someone at home. Their freephone is 0800 716 416.